Posts Tagged ‘Sleep Disorders’

Hoping for a Bed!

Well, if you’ve been reading long, you know we’ve been in the midst of sleep issues and bed fiascos for quite some time.  If you’re new around here, you can read about our saga here, here, here, here, and here.

Chloe takes forever to fall asleep — literally hours.  And she completely lacks judgement about wandering in the night.  It is not unusual for her to wander right out the front door or into the garage.  It is not unusual for her to get into trouble — silent trouble — while the rest of us sleep on.  We have tried to keep her contained for years for her safety.

Every couple of years, I take a chunk of time and attempt to train her to stay put in her bed.  But each time I have realized that she just isn’t trainable in that yet.  I experienced that disappointment again this summer as I tried to train her to stay in her bed and to go to sleep when we say, “Goodnight!”

But no.  I was unsuccessful again.  I ended up hugely sleep deprived and no closer to having Chloe trained to stay safely in bed.

So our new plan is to try to get a new bed.  A safe bed.  A bed that hopefully insurance and Medicaid will cover; however, it is not at all a guarantee that they will.  We have our eyes on Beds By George.  If insurance doesn’t pick it up, then it will be impossible to get the bed since our first quote from the company is over $10,000.  Yikes!  But we are keeping our fingers crossed and praying that it will be approved.  And maybe, just maybe by Christmastime, we’ll be pretty close to getting Chloe a nice new bed that will help her stay safe.

Chloe is also scheduled for a sleep study next week.  It is something that I’ve thought about doing for years, but other things have always been more of a priority so it’s been put on the back burner in the past.  But this summer after watching her fall asleep and listening to her fall asleep, I had some concerns again and finally called to schedule the sleep study.

The sleep study will show any seizure activity, sleep patterns, obstructive sleep apnea, how deeply she’s sleeping, patterns of relaxation . . . . all kinds of things.  The study could show us a whole lot and be really helpful and answer a lot of questions . . . or the study could show us absolutely nothing.  We’ll see.

I’ll let you know later about an update on Chloe’s sleep issues.

And the truth is, too, that Zippy should really have a sleep study done, too, probably.  But let’s just take this one at a time, shall we?

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