Here’s a list of stuff — diagnoses, treatments, medicines, specialist, etc. — that we have first-hand knowledge about.
Feel free to ask questions or let me know which of these you’re dealing with. (I will add links to these as I have time . . . )
genetic syndrome
strabismus surgery (x6)
static encephalopathy
seizure disorder
failure to thrive
swallow dysfunction
hypotonia
neurogenic bladder
dysplastic kidney
global delays
developmental delays (x2)
asthma
occupational therapy
physical therapy (x3)
speech therapy (x3)
Early Childhood Intervention (x2)
MRI
ultrasounds
VCUG
urologist
neurologist
orthopedics
AFOs
cutaneous vesicostomy
anaphylactic allergy
genetic testing
cerebral palsy
tremors
tics
oral motor issues
sensory integration dysfunction
prematurity
prenatal cocaine exposure
intracranial hemmorage
psychiatry
psychology
ophthamalogy
patching (eye)
glasses (x3)
nephrologist
neurourologist
geneticist
Focalin
Advair
Singulair
Albuterol
nebulizer
enhaler
spacer
peak flow meter
Miralax
anal botox
Enemeze
EEG
allergist
EpiPen, Jr.
mood disorder
anxiety disorder
adjustment disorder
special education
wheelchair
walker
stander
transracial adoption
special needs adoption
home health
respite care
Medically Dependent Children’s Program
Bicitra
UTIs
renal reflux
chronic constipation
low-functioning bowels
IEPs
ARDs
inclusion
self-contained classroom
ADHD
Posted by Mom on November 6, 2009 at 4:00 PM
Loving, caring,patience,organization,nurturing,calmness,stability,courage,endurance,strength of character,fortitude,strong and many more than I can think of!!!!!!!!!!!!!!!!!!
Posted by Kelly on November 7, 2009 at 10:17 AM
Thanks, Mom! I’ll have to look up fortitude to see what it means. . . .
Posted by Michelle on September 5, 2011 at 9:05 AM
I myself am also very familiar with some of these things on this list. I think stumbling upon this blog of yours today has been such a God thing
Posted by lyn craig on November 25, 2011 at 12:23 PM
wow, i am touched and overwhelmed after finding your blog and reading some of the information you’ve shared. what an amazing story your sweet family has and what a great God you serve!!! thank you for being real – for sharing your heart. i always knew you were a special lady…you have had a remarkable example of a Godly mother (and dad!). God was certainly preparing you for some challenging things. sure love you and am so proud of the woman you are.
Posted by Kelly on November 25, 2011 at 12:28 PM
Aww, thanks, Lyn. You’re sweet. And, yes, we have an amazingly faithful God!